Hypertrophic Cardiomyopathy Association
The HCMA provides support, advocacy and education to patients and their family members, the medical community and the public about hypertrophic cardiomyopathy.
Services of the HCMA-Partners in the creation of HCM Centers-over 25 in USA; Support to patients and families-understanding genetic testing, referral services, coping with diagnosis, treatment, management; educational resources: patient meeting, internet, fact sheets, 504 plans, emergency response planning, posters; assistance in insurance appeals.
Support Excellent Service and Accessibility for all patients; increase understanding and clarity of the disease; build empowerment and advocacy through information; ensure unbiased data collection; facilitate advancement through partnerships and collaboration.
ACC.19 Learning Pathways? (select one) Heart Failure and Cardiomyopathies